APPLICABILITY OF THE BERENICE PIANA LAW FOR CHILDREN WITH AUTISM SPECTRUM DISORDER: AN INTEGRATIVE REVIEW
Kiany Cardoso Nunes, Juliana Gouvêia da Silva, Luiza Valente Breda Libardi, Amanda Pimentel da Silva Miranda, Jordana Knack Nascimento, Beatriz de Barros Souza, Alan Patricio da Silva
Abstract
Introduction: in Brazil, the Berenice Piana Law (No. 12.764/2012) establishes the National Policy for the Protection of the Rights of Persons with Autism Spectrum Disorder (ASD), guaranteeing fundamental rights to this population. However, the applicability of this legislation still presents significant challenges.
Objective: to analyze, through the scientific literature, the main barriers and facilitators related to the access of people with ASD to services, and the effectiveness of the Berenice Piana Law in guaranteeing the rights of children with ASD from the perspective of their caregivers.
Method: an integrative literature review, carried out through the selection and analysis of studies on the access of people with ASD to services, the barriers faced, and the strategies that facilitate care.
Results: the analyzed studies evidenced barriers related to the organization and accessibility of services, communication difficulties, insufficient professional training, geographic and socioeconomic limitations, and limited knowledge about rights. In contrast, professional training, adapted communication, individualization and flexibility of care, guidance and participation of caregivers, coordination between families and institutions, and the use of technological resources, such as telehealth and tele-assessment, were identified as facilitators. The findings demonstrate that the formal existence of rights and services does not, by itself, guarantee their effective use by people with ASD.
Conclusion: The effectiveness of the rights of people with ASD requires, in addition to normative guarantees, the strengthening and coordination of the support network, the qualification of professionals, the adaptation of services to individual needs, and the use of strategies that are capable of reducing geographic, communicational, institutional, and socioeconomic barriers.
Keywords: Autism Spectrum Disorder, Child, Public Policy, Human Rights.
FULL TEXT
